By Sarah Lyons
A typical morning in my home begins with these phrases: “My clothes hurt me. They are too loose. I need new clothes.” As a result, I began the search for the “right” clothes for my 4-year-old daughter. After much time, many tears, lots of tight hugs and a good dose of frustration, she begins her day in the same dress she wore the day prior, and many days prior to that. The process of getting dressed, which seems simple to most, is the biggest challenge my child faces on a daily basis.
This situation is one example of what living with a child with sensory processing disorder is like.
“Everyone processes sensory input, but some people process it differently than others.” says Occupational Therapist Carrie Grosdidier. “When the processing of this information interferes with our ability to function on a day-to-day basis is when we have a problem.”
Sensory processing disorder (SPD) can be hard to diagnose because it affects each person differently. “Any of the five senses can be affected by being hypersensitive (overstimulated) or by being hyposensitive (understimulated),” says Dana Lyons, occupational therapist at Boulder City Hospital in Nevada.
A hypersensitive response to sensory input may include:
• Distracted by noises that sound normal to others (flushing toilets, clanking silverware)
• Fears surprise touch or avoids hugs
• Avoids swings and playground equipment that others enjoy
• Has poor balance; falls often
A hyposensitive response to sensory input may include:
• A constant need to touch people or textures
• An extremely high tolerance to pain
• May often harm other children and/or pets when playing; doesn’t understand own strength
• Fidgety and unable to sit still; enjoys movement-based play such as spinning, jumping, swinging, etc.
• Seems to be a “thrill seeker” and can be dangerous at times (brainbalancenters.com)
“Unfortunately, these responses are viewed by others as children behaving badly when in fact they are not,” Lyons says. “Typical punishment for ‘bad’ behavior is not optimal and can cause regression rather than progression.”
Stephanie Beaudry, mom of two children with SPD, says, “When trying to explain my son’s hyperactivity or clumsiness is due to SPD, we get told,, ‘Oh, it’s just his age,’ but it’s actually because his nervous system doesn’t respond as it should in certain situations.” SPD may cause motor clumsiness, behavioral problems, anxiety, depression or other impacts if not treated effectively. (spdfoundation.net)
Sensory Processing does create challenges for families, but there is treatment available for kids who struggle with it. “We had a fabulous occupational therapist that helped my son. She gave us tools and gave him permission to figure out what worked for him and what didn’t,” says Joy Alsup, mom of four. “He has a high need for tight, long hugs, and we understand that this is what helps him. It’s a huge priority for us.”
With the help of an occupational therapist, kids with SPD can find tools that help them balance sensory input. Activities may include swinging, wearing a weighted vest, pushing or pulling heavy objects across the room or jumping on a trampoline. Many of these activities are fun for the child and can be integrated into playtime at home. (sensorysmarts.com)
“The therapy helps more than just their physical strengths, but also their emotional strengths,” Beaudry says. “When my daughter first started therapy, she was extremely shy. She wouldn’t even talk to children her own age when they approached her. Now, four months later, she is a social butterfly.”
An occupational therapist’s main goal is to educate parents about SPD and give families tools they can use to help the child progress at home. Although families that deal with SPD may have struggles with things other people see as “normal” activities, many parents find hope in their child’s progress and support from other parents dealing with this disorder.
Alsup says, “When my son was diagnosed, I felt like he would be limited in his future. He has worked through many of his issues, and I see his SPD as part of what makes him unique. I wouldn’t have him any other way.”
It takes a lot of patience, persistence and love to parent a child with SPD, but when a child feels accepted and supported, they can work through their struggles and thrive in school and at home.
Sarah Lyons is a wife and mother of six. The inspiration for this article came from her daughter, who was diagnosed with sensory processing ddisorder in 2014. This story was originally published in the January 2016 issue of KC Parent Magazine.
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